Barbara Kroner has watched her daughter suffer from over 15,000 seizures. She has long slept in the same bed as Ellie, who has Aicardi syndrome, so that she’s there to help if the 14-year-old suffers a seizure.
“I don’t want my child having a seizure by themselves in the dark. I want to be with her,” said Kroner, a senior epidemiologist at RTI International. “Even if I don’t do anything, holding her hand, comforting her and telling her it’s gonna be okay helps me feel like I’m doing something. It helps her feel more comfortable till it’s over.”
One night in bed, she thought to herself, “I wish there was something that would tell me she’s having a seizure during the night.” Not long after she reached out to co-workers with an idea.
[…] The wearable device that could text you when your loved one has a seizure http://theepilepsynetwork.com/the-wearable-device-that-could-text-you-when-your-loved-one-has-a-seiz… […]
I am interested in finding out more about this device! I have a 24 yr old daughter who is living at home after a trial away at college. Her seizures only occur in her sleep and she had a bad experience at school. She is currently looking for a companion dog to live with, but our minds would greatly be relieved if there was a way that we would know if she was having a seizure. Right now we are always in a room close by. The last seizure she had she broke her nose falling out of bed onto a glass. If we hadn’t heard the noise she was choking and may not have survived. We have nightmares thinking about her living on her own. She is afraid to sleep which makes her more at risk. Can I be on a mailing list to get updates about this device? Our family would be very grateful. Sincerely, Cyndy Ostergaard
How can we track progress of this device and/or be informed when this product is available?