I Share The Same Journey – Erin

I was diagnosed when I was just 8 years old but have had seizures before my diagnosis. I’m on 6 medications, have a VNS and I’m on the Ketogenic Diet. My principal was the first to notice a seizure and told my parents when I was in school. Due to Status Epilepticus I almost lost my life in 2016. However just because I have Epilepsy it doesn’t make me any different than people without it. I have hobbies that are great therapy. I enjoy crafting, horseback riding and I love freehand sketching cartoon characters (even coming up with my own). Yes people with epilepsy have restrictions but we are not alone. That’s something I learned when I went to Camp Blackhawk with the help of the Epilepsy Foundation of Greater Chicago. That is one of the most important things to know when you have Epilepsy is that you aren’t the only one. I encourage others to come out and help spread the word like I do myself along with my mom who is my biggest advocate. I hope many others face their fear and do the same. Advocate and join the fight!