Blog

A student with epilepsy had been stuck on an NHS waiting list for a shower to be installed at his home for months when he suffered a seizure and drowned in his bath. NHS officials and landlord Aspire Housing had both supported a decision to install the shower and wet room... read more →

A family had their reservation at a Best Western in Baton Rouge, LA cancelled when they told the hotel that their epileptic son's service dog would be joining them. Thirteen-year-old Beau Vaughan has a rare form of epilepsy called Landau-Kleffner Syndrome, which requires him to be accompanied by his golden... read more →

On June 18, neurosurgeons at the University of Alabama at Birmingham implanted a new type of electrical stimulator to control seizures in patients with difficult-to-control epilepsy. It marked the first time in the Southeast the RNS system by NeuroPace had been implanted since the device gained FDA approval in November... read more →

Beth Collins of Fairfax, one of two Northern Virginia mothers who have moved to Colorado to obtain medical marijuana oil for her daughter with epilepsy, is continuing the effort by mothers across the country to make the oil available for the thousands of families with children who have multiple seizures... read more →

A harrowing medical decision for the parents of a local toddler. They agreed to surgery to remove parts of their daughter's brain, to spare her from damaging seizures. The Rocky River 2-year-old was having an average of 10 seizures every day, and they were taking a toll on her developing... read more →

A new study finds no adverse cognitive effects on 6-year-old children who were exposed to antiepileptic drugs (AEDs) in the womb and then breast-fed while their moms continued this therapy. In fact, these school-aged children scored higher on IQ tests than their non–breast-fed counterparts and had enhanced verbal abilities, even... read more →

The McCarthys say they've learned the true meaning of generosity. In the face of hardship, with mounting bills and a child suffering from a rare disease, the family remains optimistic because of the people working to help them. Restaurants have put out jars for donations. Neighbors have come together to... read more →

Toddler Summer Pullen will soon be able to play in her garden for the first time after being struck down by a stroke at the age of two. The youngster, above, is believed to be one of just two children in Stoke-on-Trent suffering from Dravet syndrome – a rare form of... read more →

n this Illinois town that embraces Superman, one little boy from Denver is getting super-special treatment thanks to the Make-A-Wish Foundation. Benjamin Murillo, 8, is off to the world famous Superman Celebration where thousands of caped fans gather to pay tribute to the American icon. Murillo, who has suffered with... read more →

After Matt Leavens died on Sept. 13, 2013 — just a few days before his 18th birthday — Pennridge School District asked his mother if she wanted his diploma then or if she preferred to receive it at graduation. There really never was any question. “I thought he would want... read more →