Blog

Disney World has long been the destination of successful athletes who want to celebrate winning a major championship. But, for 5-year-old Ciara Cooke – who suffers from Type 1 diabetes and epilepsy – it is the dream of a lifetime. Monday, Ciara was surprised by a group of special friends... read more →

A Newton Abbot mum has spent a punishing 12 hour day on a treadmill to raise awareness and funds for Dravet Syndrome, a rare form of epilepsy. Fiona raised more than £550 for the cause by hosting the fundraiser at Newton Abbot Leisure Centre. She has personal first hand experience of... read more →

For most children, a grazed knee - and the tears that follow - are a normal part of childhood. But Alice Rambridge has never had such an experience - because she is unable to feel pain. The nine-year-old suffers from a rare condition which means the two sides of her... read more →

Katelyn Winter is in the middle of a sentence about her grandpa - about how he, too, had epilepsy - when some unknown word starting with the letter "I'' is cut off. There's something firing off in her brain. It's small. Winter doesn't lose consciousness or convulse this time. But,... read more →

Clouds hung in the sky and the grass was wet from heavy rainfall the day before, but hundreds of families traveled to Edgebrook Park on Sunday promising their kids a day of outdoor fun. As soon as they got to the park, the weather changed; suddenly it was nothing but... read more →

Carol Nickels couldn’t have been prouder when she found out her teenage daughter had won the ‘best smile’ award at her school prom. But rather than celebrate the victory with 15-year-old Faye, all Carol was left with were photographs and memories of her infamous beaming expression. Faye died two weeks... read more →

Majesty, a two-year-old Golden retriever and service dog, is essential to 7-year-old Zachary Sorrells' life, accompanying the Arkansas boy with cerebral palsy and epilepsy at his public elementary school and preventing life-threatening seizures by signaling an alert in advance, his family says. But Majesty's presence within the Cabot School District... read more →

“I was trying to think of ways to help because sometimes you can feel helpless. I came up with the idea of a skydive which terrifies me but it is something that will make people dig deep and raise awareness and get people talking. An East Leake mum who three-year-old... read more →

They ranged from small, nearly unnoticeable twitches to terrifying and life-threatening grand mal seizures, and for nearly her entire life, seizures have been a near-daily event for 11-year-old Hermoinee Lorett. But following one of the first pediatric surgeries ever performed in Oklahoma attaching electrodes directly to the brain’s surface, Hermoinee... read more →

Three-year-old Olivia Marie Newton had a contagious smile, but behind that smile was an illness that made her short life a constant battle. She suffered from a seizure disorder that doctors could not identify, only telling her family that it was some sort of epilepsy. Olivia had near-constant seizures, sometimes... read more →