Blog

The mother of a profoundly disabled woman has taken her out of a council-run respite care centre because she came home with a big bruise on her arm. Annette Boozier’s daughter Lesley Thompson came home from the Napier Service care unit, in Rochester, crying and complaining about her bruise. Lesley,... read more →

A girl with a rare genetic condition has finally spoken her first words thanks to a diet that involves eating four tubs of cream cheese a week. Three-year-old Fields Taylor from Melton Mowbray in Leicestershire, suffers from a disorder called Glut1 Deficiency Syndrome, which affects her ability to speak. But... read more →

Children whose mothers take anti-epilepsy drugs during pregnancy face an increased risk of developing autism, a new study has warned.  Researchers found that by the age of three years old, children whose mothers had taken drugs to control their epileptic seizures were four times more likely to show traits associated... read more →

Nancy Floris, a nurse from Amesbury, Mass., has learned when something scary is about to happen with her standard poodle, Spencer. "He is like in a trance almost,” she said about the distant stare Spencer makes before a seizure that causes him to vomit, clench his jaw, fall over and... read more →

Scientists at Bonn University Hospital and at the Max Planck Institute for neurological research in Cologne have developed a method with which the chances of success of a surgical procedure for temporal lobe epilepsy can be accurately predicted. The rate of accurate predictions is more than 90%. The results are... read more →

A mother-of-two who was scared of heights for years has overcome her fear by taking part in a skydive to help raise money for a Woodford Green hospice, which helps her care for her disabled son. Maxine Davies, 28, decided to raise money for Haven House, in High Road, to... read more →

The brother of a 28-year-old man who died after collapsing in the street is to climb Mount Kilimanjaro to raise money for charity. Richard Lord, 33, wants to raise £5,500 for Epilepsy Action after his younger brother Andrew, who had heart problems and suffered epilepsy, died in January last year.... read more →

Further Studies Could Determine Benefit to Epilepsy Patients Without TSC.  A drug originally developed to prevent the rejection of transplanted organs has now been shown to dramatically reduce seizures in patients with tuberous sclerosis complex (TSC) – a genetic disease characterized by benign tumors on multiple organ systems. TSC is... read more →

Hundreds of people got downright dirty for epilepsy today. The 20th annual mud volleyball tournament in Rutland was a huge success again this year. Bump, set, spike! It's not your average volleyball game. "It's really really fun to get muddy and wet," Reese Shattuck said. It's Rutland's 20th annual mud... read more →

Anna Eppley is like any other teenager. The 13-year-old daughter of Don and Sue Eppley of Jackson Township enjoys music, riding a bicycle and being with friends. She does not let anything hold her back despite having petit mal epilepsy and wants others with the disorder to live the same way.... read more →