A Cardiff dad, whose son has a rare form of drug resistant epilepsy, is raising funds for equipment to ensure other children don’t have to endure gruelling attempts at treatment which won’t work.
Bailey Williams, 12, tried 15 drugs, with side effects including tremors and hair loss, before doctors diagnosed Lennox Gastaut Syndrome, a rare form of drug resistant epilepsy.
Now dad Craig,43,wants to spare other young people what he went through and is nearing his £65,000 target to fund a new Video Telemetry Suite at the University Hospital of Wales.
