A garden party held to help the mother of a young boy with a rare genetic disorder set up a charity has raised more than £1,000.
Konnie Newmark of Broadway, Market Lavington, was delighted with the turn out and generosity of people who spent Saturday enjoying a wide mix of music and eating BBQ food and cream teas.
She said: “I was quite overwhelmed by the support. It was wonderful.”
Mrs Newmark’s son Jai, six, is thought thought to have been the first UK child to be diagnosed with FoxG1 Syndrome.
FoxG1 affects the development of the brain. Children with it have severe development delay, cognitive disability, epilepsy, lack of speech and mobility. Jai, who goes to Larkrise School in Trowbridge, was diagnosed with the condition when he was two-and-a-half at St George’s Hospital, London.
