Rylie Maedler’s seizures started after 2013 surgery to remove a benign but aggressive tumor that spread from her jaw to the palate of her mouth.
Now Rylie’s seizures come and go, but can have a devastating impact.
They leave the Rylie dizzy, her legs numb and immobile, and with headaches that can last for days.
But medications used to treat the seizures have had their own troubling effects. One of the medicines doctors prescribed made her lethargic and unwilling to participate in normal activities.
“Like a zombie,” says Janie Maedler, Rylie’s mother.