A five-year-old with a rare condition has never had a birthday party or been on holiday – because the excitement could kill her.
Neve Dandy suffers from such a severe form of epilepsy that even a gust of wind or a fit of giggles could trigger a life-threatening seizure.
Her parents say they are living with a ‘ticking time bomb’ because they never know when too much excitement or over exertion could induce a seizure.
Neve rarely attends play dates and can never go swimming with her brother because the risk of over-excitement and infection is too high.
Neve’s condition, called Dravet syndrome, has seen her have seizures lasting up to one-and-a-half-hours and up to 200 electric shock type seizures a day.
She is also at high risk of SUDEP (sudden unexplained death in epilepsy) and sleeps with a monitor that warns her parents when her heart rate or oxygen levels change.
