Charlotte Figi has Dravet syndrome – a rare and severe form of epilepsy. She suffered from thousands of seizures every week and couldn’t walk. In desperation, her parents tried treating her with medical marijuana. After just a few months she started walking and talking for the first time. Her seizures have also almost completely stopped.
You are and inspiration to all he people suffering from intractable epilepsy.I now that I would be interested in our daughter that is 28and bee dealing with this for 16 years.Many surgeries,VNS impland every medication out there for epilepsy what can it hurt.I will be researching this though.I will also be talking to her team of neurologist at Jefferson University Hospital in Philadelpha,Pa.Thank you Charlotte parents for sharing there story and success.
God Bess,
Kathy VanBlarcum
Kristine Irineo daughter with epilepsy.
God bless Charlotte and parents. You have made a step in history that will always be a part of the future for seizure treatment. I also went to Jefferson University in Phila PA. I was having up to 15 seizures daily. I had a right temporal lobectomy, which was somewhat of a loss because a major drainage vein was in the way. Therefore medication continued to be the attempt for controlling the intractable seizures. Two years later, I had a v.e.e.g. with subdural electrodes followed by a right temporal resection. It worked for six months. Then it was one battle after another with medications. UNTIL I came across Charlotte’s story. I take Charlotte’s Web now and am thrilled to say I’m seizure free! When you have epilepsy, the word free is better than any thing Ed McMann can say. Nothing in the world can top the incredible joy of being seizure free. Nothing. Charlotte’s Web is expensive but it works and is worth every nickle. My epileptologist is 100% in favor of it and does symposiums to promote it. Take note, if you retain control (I strongly believe you will) you should not stop taking your medication without the assistance of your doctor.