She may only be able to smile, cry and eat, but Lacey Tams’ family are determined to give her the best life possible.
Her loving parents, Nicole and Richard, of Newbiggin Hall Estate, Newcastle, were overjoyed at the new addition to their family, but within just a few days their little girl started to have problems.
Lacey had to undergo an array of gruelling tests while doctors tried to establish what was wrong with her.
Nicole, 28, said: “Everything seemed normal when she was born, but at eight days old she started having seizures. We were told it was just epilepsy.
“By three months the doctors said her head wasn’t growing and she wasn’t making any developments at all. They didn’t know what it was at the time; she had two lumbar punctures, a biopsy taken from her leg and every chromosome blood test possible.”
Three-year-old Lacey suffers from a range of conditions including severe epilepsy, cortical vision impairment, microcephaly, spasticity in her muscles meaning she is unable to use any of her muscles at all and she is PEG fed directly into her stomach.