A benefit to support twin 6-year-old Darien boys who have a severe form of epilepsy, Dravet syndrome, will be held Wednesday, Nov. 5, at Jimmy’s Southside Tavern in Darien.
The benefit runs from 6 to 9 p.m. and will include drinks, food and music. The cost is $50 and registration is available online.
The event will raise money to defray medical costs for Jeremy and Miles Clark, who experienced their first seizures at just 6 months old.
After enduring countless additional seizures, many of which required urgent medical attention, the boys were diagnosed with Dravet syndrome in 2009. At best, the condition can cause severe limitations to normal childhood and, at worst, as for the twins, it is life-threatening on a daily basis.